Breaking the Silence

I have been registered as a writer here for some time, but have been reading everyone else’s contributions and thinking “there’s no way I can write as well as that!” Regardless of my feelings of inadequacy, I feel the need to at least introduce myself and do what I promised the group and myself I was going to do, by beginning to contribute properly to the blog.

I have been affected by depression for many years. My mother (a nurse in psychiatry, with depression herself) can pinpoint times when I was only five or six years old where I showed signs of depressive illness. It really started manifesting when I was 15-16 and I went through several years of bouncing from one doctor to another, trying drug after drug after drug, and all the time spinning downwards with self-destructive behaviour; self-harm, drug and alcohol abuse and four separate suicide attempts, all to try to quiet the voices in my head and end the feelings of despair. When I became pregnant with my son I stopped the alcohol and drugs, was put on paroxetine and adopted a healthier, more ’stable’ lifestyle. It was around this time I started to be taken seriously by doctors. I am almost certain that had I not become pregnant, I would not be here today. My son indirectly saved my life. It felt like because I was pregnant, the medical professionals saw me as an adult all of a sudden, and they needed to ‘make me better’ so that I would be an adequate parent. I was put on the paroxetine because my (male) doctor didn’t know what else to try. There was nothing else to try. The benefits to my mental heath outweighed the risks to the foetus who later became my son, so my pregnancy was also my first experience of the dullness of a drugged mind.

Paroxetine is numbing and addictive. It prevents me from reaching the very lowest of my lows, but in kind it also prevents me from reaching the highest of my highs. As a teenager I was a creative soul; an artist, a painter, a poet. Paroxetine strips away my creativity, it leaves me standing cold with a paintbrush in my hand and a furrowed brow as I stare at a blank canvas, wondering what it is I am supposed to do. My anxiety makes me very forgetful, and sometimes I forget to take my tablet. It has a very short ‘half-life’ so the effects of withdrawal are felt rapidly in comparison to other antidepressants - within 24-48 hours. I begin to feel dizzy and unbalanced, like the fluid in my ears has frozen over and I have no idea if I am upside-down or back to front. When that dizziness begins I have to take the tablet within a few hours, because otherwise I will begin shaking and vomiting. When I pop that pill after forgetting, I know I have a two to three hour ‘window’ of creativity. There is just little enough of the drug in my system that colours look right again, and everything is bright and glowing and loud and my brain buzzes with ideas. Then it kicks in again and I go back to normal, struggling to squeeze out even a sentence or brush stroke.

I moved to the house I live in now two years ago, and met Dr R. Dr R is a wonderful woman, a feminist, the kind of doctor who never hurries you and takes her time and doesn’t fob you off with antibiotics or painkillers or long words. Dr R has admitted I am likely to be on paroxetine for life. It took me a while to become comfortable with this, but I accept it now. The withdrawal is physically painful, and the slight dampening of experiences and medical dependency is a small price to pay for the sake of staying stable around my small child. I don’t advocate antidepressant drugs - in fact I advise strongly against them - but I recognise through my own experience and from the experiences of others that for some of us, they allow us to lead fairly normal lives.

Alongside my depression I suffer from anxiety disorder, and this is more detrimental than the depression, which surprises many people. The general public seems to perceive anxiety disorder as ‘worrying’ or occasional panic attacks but it is so much more than that. My own experience of it includes not only anxiety and panic but also obsessive-compulsive disorder, extreme paranoia, delusions and aural hallucinations. I was recently referred to an organisation which deals with psychosis, as the gateway psychiatrist feared that my previous drug abuse had triggered it (a theory that not all psychiatric professionals agree on). I had a session with the psychologists there, who concluded that it was not psychosis but anxiety that caused my symptoms. I was loathe to become dependent on more drugs, and am now in the beginning stages of Cognitive Behavioural Therapy with a wonderful woman who treats me respectfully, with dignity, like a normal person.

Living as a woman with mental health problems is difficult; living as a mother with mental health problems is more difficult still. I remember a few weeks before my son was born, out with his father (now my ex) and his mother (my son’s grandma). She, not being well-endowed in the tact area, expressed her concern about my mental illness, and wondered whether I was worried my son would be taken away once social services caught wind of my inadequacies. I had not even thought of it until then. I laughed it off and assured her that I would be a fit parent, but in the back of my mind I wondered. Did she think I was going to ‘go loopy’ and harm my child? Did she think I would be a bad parent because of my illnesses? After my son was born I was scared to go to my doctor, scared to talk to anyone about my mental problems because I was afraid they would perceive it as a sign of weakness and decide I was unfit to look after my baby.

This of course compounded on top of the anxiety I already suffered, plus the inevitable anxiety of the new mother. My ex, though a sufferer of depression himself, had no sympathy for my feelings and my dependency, anxiety and feelings of inadequacy were the cause of many, many arguments. Then my son had a near-fatal accident at three months; my ex tripped on the stairs and dropped him. He suffered a broken skull and collarbone and massive brain haemorrhaging. We were told he would die, and then after two bouts of brain surgery when it emerged he would live, we were told he would remain blind forever, he would probably never walk or talk, he was lost to us. By some miracle he made a full recovery; the only signs now are the large scar which arcs over his head from the surgery, and hemiparesis in his right arm - stiffness and slight inability of movement. A few months later my ex and I were irreparably damaged and we went our separate ways. Living alone has helped my healing considerably; our relationship was a destructive one and he could not give me the support I so desperately needed.

This has gone in a totally different direction to that which I intended when I first sat down and began typing! It turns out I have a lot to say; about the ways men and women are treated differently by the mental health system, about the ways mentally ill men and women are treated differently by society, about being a mother with mental illness, about the inadequacies of the system (I ‘live’ on Incapacity Benefit, though it’s barely enough to live on), about the history of mental illness and women’s ‘hysteria’, about theories on genetic predisposition towards mental illness. I can’t fit it all in today, but I have at least broken the ice and told you part of ‘my story’, how I came to be in the place I am now, how I came to this blog, what I am all about. I have never written about my mental health issues in detail before. It is cathartic, and it is important that our voices are heard. Now you know me, and I have my topic ideas here to jog my memory, I have a feeling you’ll be hearing a lot more from me. Thank you for giving me your time, and thank you to the creators and other writers of this blog for allowing me to have a voice.

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